We found out from Knox's cardiologist that after viewing the MRI of his
chest that on a scale of 1-10...10 being high risk...he is a 10 and at
high risk for the next surgery. His anatomy has compensated for some
clotting in his arms we didn't know about by reversing circulation to a
point that they don't think he can recover from the Glenn procedure
unless they change the procedure which has never
been done...so, we will hear more on Wednesday about a new strategy for
him...right now he is a likely candidate for heart transplant...all of
his blood transfusions put him at some risk for rejection of a heart
because of the antibodies his body has produced. Today, he is stable
and doing better with his Norwood recovery than most babies like him,
they say. So, we are headed home. The one factor concerning his
collateral veins and where they are returning blood is the obstacle. He
is outgrowing his shunt and needs help within the next few months. We
are backing out of the house we bought and may have to relocate
temporarily for a transplant. Docs are consulting with other
institutions for advice. We are tired.
I've got on here to blog several times in the past few days and have had a really hard time posting anything. We are an hour away from them and I feel so helpless. How can I blog about the good things going on in my life when my friends are hurting and going through such a hard time. I don't know what's next for baby Knox but please pray for him and his family. My heart just hurts for them now and if I can't do anything else I can ask for prayers for them.
2 comments:
We prayed for them this morning after Loretta and Neal's mom went up to speak on their behalf. Everyone was crying. It's so crazy and amazing - the body of Christ - ... How they love and care for someone SO MUCH that none of us have actually met (Knox) yet we all feel like we know and live life with him. Honestly that's how it feels. I really truly believe God is going to bring Him through this. That's hard to say because, what if He doesn't? But I really feel like He will. I wish we could do more, as does everybody.
I heard about church yesterday and was so amazed. I'm so glad their families in Alabama have support like LifePoint. I know Knox has so many prayers for him and I do believe that God can bring Knox through this. My heart just breaks for the family. This time of insecurity and having 2 other kids... I can't even imagine.
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