We found out from Knox's cardiologist that after viewing the MRI of his chest that on a scale of 1-10...10 being high risk...he is a 10 and at high risk for the next surgery. His anatomy has compensated for some clotting in his arms we didn't know about by reversing circulation to a point that they don't think he can recover from the Glenn procedure unless they change the procedure which has never been done...so, we will hear more on Wednesday about a new strategy for him...right now he is a likely candidate for heart transplant...all of his blood transfusions put him at some risk for rejection of a heart because of the antibodies his body has produced. Today, he is stable and doing better with his Norwood recovery than most babies like him, they say. So, we are headed home. The one factor concerning his collateral veins and where they are returning blood is the obstacle. He is outgrowing his shunt and needs help within the next few months. We are backing out of the house we bought and may have to relocate temporarily for a transplant. Docs are consulting with other institutions for advice. We are tired.
I've got on here to blog several times in the past few days and have had a really hard time posting anything. We are an hour away from them and I feel so helpless. How can I blog about the good things going on in my life when my friends are hurting and going through such a hard time. I don't know what's next for baby Knox but please pray for him and his family. My heart just hurts for them now and if I can't do anything else I can ask for prayers for them.